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Carousel Horse restored on The Repair Shop turned into an adult book supporting epilepsy awareness

Jennifer Munro and her daughter, Kate Horncastle with Edward the carousel horse

Avid viewers of BBC’s The Repair Shop may recall Jay and his team of miracle workers restoring a mother’s carousel horse for her disabled daughter.

Its owner, Jennifer Munro, has now published a book for adults with learning disabilities.

The novel, Edward Pureheart and the Forever Children, was written for Munro’s daughter Kate Horncastle after the author struggled to find any suitable stories for her.

Horncastle has neurodevelopmental delays, autism and epilepsy which is controlled by medication.

Her mum hopes profits from the book will go towards epilepsy research so people living with the condition will no longer have to take their daily pills. 

"We knew she had epilepsy, she had a very low IQ and she had autism, but we didn’t know why," Munro told BBC News.

After a series of tests, medical experts concluded Horncastle’s conditions could be traced back to a rare genetic difference.

Munro said: "It’s called CHD2 deletion and they told me that there are only 270 other people with that diagnosis in the world.

"If they can figure out exactly what the gene deletion means, they can edit the genes and it’s possible that people like Kate won’t need epilepsy medicines anymore.”

The ‘Edward’ in her novel is the carousel horse which takes centre place in the family’s garden to keep Horncastle calm and relaxed.

"It was quite strange actually because she said this somebody is coming to your garden and she told me it was a horse," said Munro.

"I said 'you can’t have real horse in here'.

"A big truck came and he was in a box, brought on a ship - so it wasn’t a real horse - she was just tricking me."

The carousel horse is thought to be over 100 years old, so it was starting to show its age, the paint was peeling and the wood was beginning to rot.

But thanks to BBC’s Repair Shop, Edward was given a makeover and is now waterproof looking brand spanking new.

It’s now the main character for Munro’s latest book for adults which tells fictional stories about the adventures in a Texan fairground where Edward only communicates to people who are neurodivergent. 

“I just thought 'where is the magic for them?' Munro told the BBC.

"Adult books are not appropriate, children’s books aren’t - you need something in the middle - something for them because they are unique."

Munro went on to explain there was no “mental age” for forever children like her daughter.

She added: "You can’t say 'well she’s four' or 'she’s six'. She's not - she’s many different ages all at the same time and in many different ways.

"Very seldom are they made to feel that their differences a good thing.

"But they are themselves - perfect and complete.

"Those themes are in the book too - about accepting each other the way we are and being loved for who you are."

[ You can watch the episode of The Repair Shop Jennifer Munro featuring on BBC iPlayer. ]

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