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Donor donates £20K to keep disabled boy alive

Isaac Blake
Isaac Blake Image credit: news.sky.com

A family caring for their severely disabled son have received an anonymous donation of £20,000 to cover electricity bills in order to keep him alive.

Nine-year-old Isaac Blake was born with Allan-Herndon-Dudley syndrome, he weighs just 11kg.

Maxine Rothchester has looked after Isaac since he was eight months old, she told Sky News the cost of living crisis has put the boy’s life under threat.

"I, like a lot of parents with children who need this equipment, am terrified," Ms Rothchester explained.

"The equipment that we need is not a choice - it's life for Isaac.

"He has a lift to get upstairs, we have a bath that goes up and down, we have a profiling bed, he's on oxygen 24/7 - that's run by a machine. Every aspect of his life is controlled by electricity.

Rothchester receives Universal Credit and support from the NHS, but because she is Isaac’s full-time carer she is unable to work.

She has noticed a steep rise in her electricity bills.

"I have noticed them change already," Rothchester said.

"We're probably spending about £30 a week more than we were. I don't quite know how we are going to cope when it all goes up again. Because the money coming in is going to stay the same [but] the money going out is going to be a lot more.

"Yes, we do get disability living allowance, but that's supposed to be there to cover things for Isaac like play equipment. It's not meant to pay the household bills, which is what it'll end up going on."

Rothchester went on to say: "I cannot think of any other way to save money. I'll just have to pay it. I'll just have to find it somehow. Probably cut back on my own food."

She is calling for the government to outline what support will be offered to households struggling to pay their bills.

"To have a plan ahead of the next big rise would be a really good thing to help stop us worrying even more," Rothchester said.

"I'm not asking for much, I'm just asking for help with power to keep my little boy alive."

In October, the cap on domestic energy bills is due to reach new highs of more than £3,500.